LIBRARY OF RESOURCES
Toolkits, guides and resources to help you navigate the impact of health challenges in your life, as well as navigate the healthcare system.
Designed by medical professionals, people with lived experiences and regulated by the Patient Information Forum so you can trust what we share is reliable and accurate.
KNOW YOUR NORMAL
How to get to 'know yourself' to help identify early changes that could be red flags.
What to do and what to expect when waiting for a diagnosis.
Our guides help provide the basics - because early detection of changes can be life saving.
GETTING DIAGNOSED
When you are trying to find out what the cause of your symptoms are it can be a scary time. Whether to go private or use the NHS, understanding what a 2 Week Wait is...we have information to answer all these questions.
NEWLY DIAGNOSED
When newly diagnosed it can feel as though the world as you know it has just fallen away.
Where to start, what next and what to expect?
Our guide and signposting for services and support available will help you.
LIFE AFTER TREATMENT
When treatment ends, people around you presume that phase of your life is over and that everything will go 'back to normal'
But who you were pre-diagnosis is not the same person. So what happens next and how do you process everything you have been through?
LIFE-LIMITING DIAGNOSIS
An incurable diagnosis or one which has the potential to shorten your life expectancy will come as a devastating blow. What happens next, what does it mean...the fear and impact can be devastating. There are ways to ensure you regain control, feel empowered and have support. We have worked with people who are thriving despite being given an incurable diagnosis and have developed these resources to help you live as well as possible, as long as possible - with control.
IMPACT FOR THE CARERS
When someone is going through a major life challenge with their health there are often people in the shadows also affected but not often feeling supported. We want to support those indirectly affected - friends, partners, family, carers. Because your world can also be turned upside down.
ICE TOOLKIT
A toolkit to help you communicate with your doctor using a method that they understand.
SHARE YOUR ICE
Ideas, Concerns, Expectations.
A method of communication doctors are trained in and which we are sharing with you.
2 WEEK WAIT
What does a 2 week wait mean? What can I expect?
This guide will help answer your questions about what it means if a GP puts you on a '2 week wait' referral'.
NHS Vs PRIVATE
Patients often wonder what the difference between the NHS and private healthcare system is.
This is a neutral, independent guide to provide you with the pros/cons and facts about the two pathways for healthcare.
SPECIALISTS
What do all the different hospital specialists mean/do?
A guide to help explain the hospital system.
INVESTIGATIONS
What is the difference between an MRI or a CT? Different scans for different tissues...
This guide helps explain what the different types of imaging are and what to expect as a patient.
HOW TO ADVOCATE
A big question for everyone is how to feel heard and seen in appointments. When struggling to communicate, or feeling like your symptoms are being ignored...what can you do?
BREAST CANCER CHECK WITH US
THE FIRST OF ITS KIND EXAMINATION VIDEO TO HELP YOU CHECK YOUR BREASTS WITH US START TO FINISH - A BREAST CANCER AWARENESS TOOLKIT
GYNAE CANCER TOOLKIT
WHETHER YOU ARE WANTING TO KNOW WHAT YOUR NORMAL IS, TRYING TO MAKE SENSE OF SOME UNUSUAL SYMPTOMS, JUST BEEN DIAGNOSED, OR RECOVERING FROM TREATMENT...
Help us continue our work
We are an independent charity, reliant on donations and sponsorship...
As a small but rapidly growing charity, our services rely on every penny donated from individuals, fundraising and sponsors. Every donation goes directly to the vital services straight to people who are facing their mortality at a young age.
Make a one of donation, donate regularly, sponsor or organise a fundraiser. Every pound goes directly to where it is needed, any health challenge.
DONATE TO HELP PEOPLE IN DESPERATE NEED FOR SUPPORT AS THEY FACE THEIR MORTALITY
Information you can trust...
We are regulated by the Patient Information Forum which means we hold the PIF Tick of approval. This shows that the information we share is reliable and safe.